PicnicHealth’s Hemophilia Registry

Answer Your Hemophilia Research Questions

Registry insights from across the patient journey

Generate high-quality, longitudinal evidence to answer your hemophilia research questions with PicnicHealth.

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Why PicnicHealth

Meet your real-world hemophilia evidence needs

Longitudinal, consistent insights
Deep data from across the patient journey
Representative population
Robust Patient Insights

Explore PicnicHealth’s Hemophilia Registry

Variables captured across the patient journey:

  • Demographics
  • Treatment history
  • Disease history 
  • Labs & measurements
    • Anatomic site of bleed
    • Bleed cause
    • Bleed treatment
    • Anatomic type of bleed
    • Vitals
    • Common labs such as CBC
  • Surveys & clinical assessments
    • Tailored PROs
    • PROMIS-29 (QoL) 
    • Custom bleeds and treatments surveys
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